The following information can be found below:
- HIV & Coronavirus
- What is HIV?
- What is AIDS?
- How is HIV transmitted?
- What do we mean by CD4 count?
- What is Viral Load?
- Treatment guidelines
- What is PEP?
- What is PrEP?
- HIV Testing
- The HIV Resource YOU control
Other related links on our website:
HIV & Coronavirus
Whilst there’s currently no evidence to suggest that people living with HIV are at higher risk of contracting coronavirus, government advice classifies people with HIV as vulnerable. In view of this we would advise you to visit The British HIV Association https://www.bhiva.org/coronavirus-COVID-19-and-HIV-update-from-BHIVA for more details and regular updates. Alternatively please speak to your HIV clinician if you’re unclear about your situation.
For general information on the coronavirus please visit www.gov.uk
If you have concerns relating to the virus call 111 or visit www.nhs.uk
What is HIV?
There is a lot of information available about HIV, particularly on the Internet, and at times this can be conflicting, overwhelming and confusing.
HIV is a virus which attacks and weakens the immune system. The immune system is the body’s natural defence that protects it against disease and ill health. HIV stands for human immunodeficiency virus. If left undiagnosed and untreated HIV can really weaken the immune system and as a result the body is unable to fight off infections.
Untreated HIV can make a person very ill because the immune system becomes so weakened that it’s unable to protect the body effectively. It can then be more difficult to treat the HIV, but if diagnosed and treated in time for the immune system to recover, then the person can expect to live as long as someone without HIV and not to suffer any ill-health due to their HIV infection. Effective anti-HIV drugs normally reduce the amount of virus in your blood stream to such a low level that it is undetectable – this is called ‘an undetectable viral load’. If you have an undetectable viral load you cannot transmit HIV through sexual contact. This is called ‘an undetectable viral load’. If you have an undetectable viral load you cannot transmit HIV through sexual contact. Early diagnosis and treatment is vitally important.
What is AIDS?
AIDS stands for acquired immune deficiency syndrome, and it is not the same as HIV. You cannot ‘catch AIDS’. If you have been infected by HIV, in the course of time, if you are not receiving treatment, the virus can weaken your immune system so that you become vulnerable to infections which you would normally be able to fight off.
You no longer hear so much about ‘AIDS’ in the UK today – and that is because most people with HIV in the UK are being treated successfully and remain healthy. Again, it is really important to know if you have HIV so you can get the right treatment as soon as possible!
How is HIV transmitted?
Contrary to what many people think, HIV is not an easy virus to catch or pass on. HIV can only be passed on through certain body fluids, when a route into the body is available. Only certain body fluids contain HIV in high enough quantities to cause transmission. These are: sexual fluids (semen, pre-ejaculatory fluid, vaginal fluids and anal mucus); blood and breast milk.
- Sexual transmission
HIV can be transmitted through anal or vaginal sex if you do not use a condom or if the condom slips off or tears when you are having sex. There is a small risk of catching HIV if you get infected semen or vaginal fluids in your mouth. There is absolutely no risk of catching HIV through kissing or mutual masturbation. If you are on treatment for HIV infection the anti-HIV drugs will normally reduce the amount of virus in your blood stream to such a low level that it is undetectable – this is called ‘an undetectable viral load’. If you have an undetectable viral load you cannot transmit HIV through sexual contact.
- Blood to blood transmission
HIV can be transmitted through sharing needles or by needle-stick injuries, but not by insect bites.
- Mother to baby transmission
A pregnant woman living with HIV can pass HIV on to her child through pregnancy, during childbirth or breast milk. All pregnant women in the UK are offered an HIV test, and if you are HIV positive you can reduce the risk of passing on HIV to your baby through taking anti-viral drugs, and avoiding breast feeding. In the UK it is very unusual for HIV to be passed from mother to baby. Less than 1% of babies born to women living with HIV in the UK are born with HIV themselves.
What do we mean by CD4 count?
This measure is an indication of the strength of the immune system. CD4 count is an indication of the strength of the immune system. In general, the higher your CD4 figure is, then the stronger your immune system is. It is now recommended that anti-viral treatment is offered to you as soon as you are diagnosed. Monitoring your CD4 count will help determine whether the treatment is working properly or not. If your CD4 count has dropped to abnormally low levels due to HIV infection it should start to rise to more normal levels after the treatments begin to take effect. Because CD4 counts can vary between individuals, a single CD4 count doesn’t tell you very much. Several CD4 counts are needed in order to see if there are any trends.
This measure is an indication of the strength of the immune system. CD4 count is an indication of the strength of the immune system. In general, the higher your CD4 figure is, then the stronger your immune system is. It is now recommended that anti-viral treatment is offered to you as soon as you are diagnosed. Monitoring your CD4 count will help determine whether the treatment is working properly or not. If your CD4 count has dropped to abnormally low levels due to HIV infection it should start to rise to more normal levels after the treatments begin to take effect. Because CD4 counts can vary between individuals, a single CD4 count doesn’t tell you very much. Several CD4 counts are needed in order to see if there are any trends.
CD4 count is an indication of the strength of the immune system. In general, the higher your CD4 figure is, then the stronger your immune system is. It is now recommended that anti-viral treatment is offered to you as soon as you are diagnosed. Monitoring your CD4 count will help determine whether the treatment is working properly or not. If your CD4 count has dropped to abnormally low levels due to HIV infection it should start to rise to more normal levels after the treatments begin to take effect. Because CD4 counts can vary between individuals, a single CD4 count doesn’t tell you very much. Several CD4 counts are needed in order to see if there are any trends.
CD4 counts fluctuate throughout the day. They are generally lower in the morning and increase throughout the day. They are generally higher immediately after exercise and can be affected by diet, stress and other infections. It is important to acknowledge that your CD4 count will have natural variations and these do not mean that you necessarily have a stronger or weaker immune system.
What is viral load?
This measure indicates how much HIV there is per cubic millilitre of blood. The lower this number, the less HIV is in the system and the less damage it can cause.
The aim of putting people on treatment is to get the viral load count to undetectable levels. This means that the amount of HIV in the system is at such low levels that ill-health is unlikely due to the HIV and the risk of passing on HIV is in effect close to zero.
Viral loads will vary between individuals, but the vast majority of people will quickly achieve an undetectable viral load once treatment has started.
What is an undetectable viral load?
This is mainly only achieved when taking HIV medication. The term undetectable viral load can be misleading to some people. Although it is called undetectable, there is still HIV present in the body. It is called undetectable as the devices used to determine the viral load cannot detect HIV if there are fewer than 40 to 50 copies of HIV per cubic millilitre of blood. Having an undetectable viral load is the aim of treatments and means that the treatments you are taking are working i.e. HIV is present in very low levels, HIV is causing less damage to your body and the likelihood of passing on HIV is in effect close to zero
Treatment guidelines
Current UK guidelines state that anyone living with HIV can start treatment when they feel that the time is right. However, if you’re not on treatment, the viral load and the CD4 count maybe factors that determine when your doctors think it is appropriate for you to start treatment. You can talk to your HIV consultant about this.
What is PEP?
PEP stands for post exposure prophylaxis. PEP is HIV medication you take after you have had an exposure. It’s a combination of HIV drugs which can be used to reduce the likelihood of a HIV negative person getting HIV after they have been exposed to the virus. PEP needs to be prescribed, and can be obtained from A&E departments or sexual health clinics. PEP needs to be taken as soon after exposure as possible to increase its chances of working effectively. In the UK, PEP can be taken up to 72 hours after exposure. However, it is much less likely to be effective when used this late. PEP is not a single tablet. It is a combination of three HIV drugs which need to be taken for 28 days. The principle behind PEP is that the very early use of HIV drugs may stop HIV from establishing itself in the body. You will be asked to take a HIV test before being prescribed PEP to ensure that you are not already HIV positive; the result will not tell you anything about your most recent exposure to HIV.
What is PrEP?
PrEP stands for Pre-exposure Prophylaxis. PrEP is anti HIV medication in the form of a pill which can be taken daily or before sex, in order to prevent HIV from being able to take hold in someone’s body if they are exposed to it. This is an exciting development in HIV prevention, and studies undertaken so far show that PrEP is successful in preventing HIV infection in most settings.
In spring 2020 the Government announced that funds would be made available to enable people to access PrEP for free through the NHS. Up till then it was only possible to obtain Prep by buying it or enrolling in the ‘PrEP Clinical Impact Trial’. It will probably take some time for PrEP to be made available through every sexual health clinic – please contact your local services to find out more information. Even if you cannot as yet access PrEP through your local sexual health clinic, you can access free HIV testing and appropriate advice and support around taking PrEP.
You can find out more about buying PrEP at:
If you are thinking of taking PrEP it is really important to make sure that you are HIV negative before starting on the medication.
HIV Testing
A HIV test is used to determine if someone is HIV positive and taking a HIV test has never been simpler. You can only know your HIV status by taking a HIV test.
Knowing your HIV status puts you in control of your health. A positive diagnosis means you can access the medical treatment and support you need to stay well.
With early diagnosis, treatment and healthcare, people living with HIV can expect a normal life expectancy and being on effective treatment means the risk of transmission is effectively zero.
HIV medication works by reducing the amount of the virus in the blood to undetectable levels. This means the levels of HIV are so low that the virus cannot be passed on. This is called having an undetectable viral load or being undetectable. The risk of transmission is effectively zero, supporting the message U=U (Undetectable = Untransmittable).
It can take up to six months of effective treatment, which means taking the medication as prescribed, for some people to become undetectable.
HIV tests are not able to detect HIV immediately after you have been infected. The most up to date intravenous blood tests available at sexual health clinics can reliably detect HIV after 4-6 weeks. Simple finger prick tests can take up to 12 weeks after exposure to detect the virus. If you think you may have been exposed to HIV within the last 72 hours you may want to go to a sexual health clinic or Accident and Emergency to talk about the possibility of ‘PEP’ (Post-Exposure Prophylaxis).
We are no longer funded to provide HIV tests but to get a test or for more information you can contact:
iCaSH (contraception and sexual health clinic) on 0300 300 3030 or visit https://www.icash.nhs.uk/contraception-sexual-health/hiv
The Terrence Higgins Trust (THT) at cambridgeshirecso@tht.org.uk
Living with HIV and mental health
Emotional wellbeing and mental health are important for everyone, regardless of their HIV status. With access to HIV treatment, HIV has become a manageable long term medical condition. However, some people living with HIV will experience mental health problems. There are different reasons for this, including HIV-related stigma, self-stigma and treatment side effects. Sometimes mental health challenges are not directly linked to having HIV, but to other factors and life events.
If you are struggling with your mental health you should speak to a professional, e.g., your HIV clinician or GP and they should be able to refer you for support.
Dhiverse provides a free counselling service for people living with HIV click here
We also provide emotional support for people who don’t necessarily need professional counselling but would like the opportunity to speak to someone about how they’re feeling. To arrange a chat or for more information please contact our Emotional Support Worker at shiellah@dhiverse.org.uk.
The HIV resource you control!
NAT have created a webpage that enables people to create their own resources. Find out more here.
Changing Perceptions of HIV Toolkit
Click here for the toolkit.